We Do

Research Advocacy Education

The Central Ohio Down Syndrome Society (CODSS) takes a fresh and proactive approach toward advocacy. Along with creating a welcoming community of support for individuals and families living with Down syndrome, we're aggressively advancing research, legislation and education.

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Take action to bring about change.

From convening our very own scientific advisory panel to having a legislative lobbyist represent our interests to lawmakers, the Central Ohio Down Syndrome Society is leading the charge to improve the lives and futures of those living with Down syndrome.

We don’t just talk about making a difference, we implement plans and strategies to achieve our goals. And we’re just getting started. Our actions are currently focused on three critical areas that have not been supported over the last 25 years.

Research and Funding

We are the first and only Down syndrome organization in the state to convene a statewide scientific research advisory panel and offer seed grants to researchers. We are also now working in partnership with nationally acclaimed research institutions, including Nationwide Children’s Hospital, the Davis Heart & Lung Institute at The Ohio State University, and the Down Syndrome Research & Treatment Foundation. Read more.

Political Advocacy

Federal funding for research related to Down syndrome has dropped dramatically from $23 million in 2003 to $17 million in 2008. This is a startling statistic—and one we are taking strides to change by having our own legislative lobbyist. We now have a strong voice carrying our concerns to lawmakers in the Ohio State House and in Washington. Read more.

Education and Engagement

CODSS is already creating a community of support and learning. We’re the first in the state to offer members free access to regular health and wellness clinics. We are also in the process of creating a communication network for our members to connect and collaborate for support and fundraising. Read more.

We’re just getting started and we’re already making a difference. As we grow, so will the momentum we’re building, helping even more individuals and families living with Down syndrome